LENS

Lived Experience Narratives and scenarios of eating disorders

  

Using creative approaches to understand young people’s experiences and co-create lived experience stories to shift the narrative on eating disorders


About LENS

  

LENS – Lived Experience Narratives and Scenarios of Eating Disorders, focuses on engaging with young people to understand individual experiences of eating disorders.  

  

Through this research we would like to:  

  • Understand experiences of young people from diverse, underrepresented, and ‘at risk’ groups. This includes – young people from ethnically and culturally diverse groups; young people who are LGBTQ+; or young people impacted by resource insecurity (e.g., poverty/ cost of living); and young people living rurally.  

  • Co-create a range of stories from lived experience to develop an inclusive language for how we talk about and raise awareness of eating disorders.  

  • Develop ideas and recommendations to improve support and services for young people with eating disorders.  

     

LENS project is undertaken as part of EDIFY – a programme of research focused on how we understand and treat eating disorders in young people, with the aim to transform eating disorder detection, prevention, treatment and services, with the potential for step change in policy and practice for young people with eating disorders. You can find out more about EDIFY here. 

LENS project is part of the ‘lived experience’ workstream of EDIFY. This workstream is led by researchers from the Glasgow School of Art and University of Nottingham using creative approaches, in collaboration with 2 youth advisors with lived experience of eating disorders. 


We want to hear from you!

Please follow these links for more information on the LENS project and find out about how to take part.


OUR Team

Sneha Raman

Sneha is a design researcher with expertise in participatory design. Her research portfolio spans a range of topics and contexts including: mental health of young people from ethnically diverse groups; online safety of young people with learning disabilities; care and emotional support for women around miscarriage; and reducing risk of harm and supporting people who use drugs to live well. A key research focus across these contexts is enabling genuine participation from citizens and communities with diverse abilities, sensitivities and lived experiences to co-design future health, wellbeing and care.

Tara French 

Tara is Programme Lead for Digital Inclusion within the Digital Health and Care Directorate, Scottish Government. She is also a Visiting Fellow at The Glasgow School of Art. Tara is passionate about design-led change across health and social care and has an interdisciplinary background in academia, policy and practice. Tara has expertise in facilitating transdisciplinary collaborations in the context of care and wellbeing, with experience of working at local and national levels. Her approach focuses on creating and enabling a culture of opportunity and empowerment through creative engagement and genuine co-design. 

Fiona Stephens

Fiona is a research assistant at Glasgow School of Art working on work stream 1 of EDIFY. Fiona has completed a Master of Research at the Innovation School at GSA, with research looking at curating multi-disciplinary approaches to enrich social support for mental health and wellbeing. She has a background in curatorial practice and is particularly interested in participatory engagement, knowledge sharing and the relationship between arts and health. 

 

Youth Advisors

We have Youth Advisors, young people with lived experience of eating disorders, who are working with us to co-produce the research across the EDIFY programme.

Our LENS Youth Advisors are

Tallulah Street

Hello! I’m Tallulah (she/her), an illustration student and yoga teacher living in Cornwall. I’m passionate about the power of art and storytelling for healing – hopefully one day I’ll train as an arts therapist. Aside from painting, I love dancing, gardening and wandering along the coast path that I’m lucky to live by. I think my favourite film is Portrait of a Lady on Fire (at the moment at least!), but I’m also a sucker for anything by Studio Ghibli.

Beck Heslop

Beck (they/them) is an autistic postgraduate historian with a special interest in the lived experiences of disability. Being an active member of and advocate for the queer community, their favourite film is the Rocky Horror Picture Show, and they have been known to dress in drag at attend screenings and theatre performances of the classic.

 

LIVED EXPERIENCE WORKSTREAM PARTNERS

Our research partners at the University of Nottingham are

Heike Bartel

Heike Bartel is Professor of German Studies and Health Humanities at The University of Nottingham and passionate about the use of literature and art for better health. She has led interdisciplinary AHRC- and Wellcome-funded research projects on eating disorders in men and boys, and together with male experts by experience has designed arts-based training tools used by the RCGP, RCN and several charities. She is particularly interested in the role of films, animation, music, poetry and other writing by those with lived experience to help understand eating disorders better.

Tamsin Parnell

Dr Tamsin Parnell is an applied linguist and Research Assistant on the EDIFY project. She is broadly interested in the relationship between language and society. For EDIFY, Tamsin is looking at the language used to talk about mental health and, specifically, how people communicate and gain information about eating disorders online. She has previously published work on health communication, including COVID-19 and avian influenza, and on homelessness discourses.

 

Funding

EDIFY (Eating Disorders: Delineating Illness And Recovery Trajectories To Inform Personalised Prevention And Early Intervention) programme is funded through the Medical Research Council/Arts and Humanities Research Council/Economic and Social Research Council Adolescence, Mental Health and the Developing Mind initiative (grant number MR/W002418/1), and a partnership between researchers from Kings College London, University of Edinburgh, Beat, Glasgow School of Art, University College London and University of Nottingham, and co-produced with a youth advisory board of 15 youth advisors with lived experience of eating disorders. 


Contact

If you have any questions about the project or would like to get involved,

please contact Fiona at f.stephens@gsa.ac.uk 

Alternatively, please get in touch via the form below: